Health Diseases And Conditions Registries directory & Health Diseases And Conditions Registries website listings at HealthHaven.com

Agency for Toxic Substances and Disease Registry (ATSDR)@
directory.healthhaven.com/.../Agency_for_Toxic_Substances_and_Disease_Registry__ATSDR_
Chorionic Villus Sampling Birth Defects Registry
To obtain information about CVS-exposed children with any type of birth defect or hemangioma.
neuro-www3.mgh.harvard.edu/cvs/cvs.html
Chromosome 18 Registry & Research Society
www.chromosome18.org
Gaucher Registry, The
Longitudinal, observational program that tracks the health outcomes of routine clinical practice for patients with the disease.
www.gaucherregistry.com
Lupus Multiplex Registry and Repository
Long-term research project examining the different ways Systemic Lupus Erythematosus (SLE) affects various ethnic groups. Sponsored by the National Institute of Arthritis and Musculoskeletal and Skin Diseases.
lupus.omrf.org
National Registry for Ichthyosis and Related Disorders
Established to promote research into diagnosis and treatment, and to enroll affected individuals in the registry.
depts.washington.edu/ichreg/ichthyosis.registry
Perioperative Cardiac Arrest Registry
POCA Registry investigates cardiac arrests and deaths of pediatric patients during the administration of or recovery from anesthesia to identify possible relationship of anasthesia to those incidents.
depts.washington.edu/asaccp/POCA
Prostate Worldwide Registry
Interact with others prostate treatment.
www.prostatehealth.com

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